Saturday

Kaycee stayed with Kylie last night so that I could get a good night's rest. This morning when I arrived, we got Kylie out of bed for the first time and took her for a ride in the pink car. She did very well but was ready to lay back down after four times around on the floor. She just couldn't seem to get comfortable after we got her tucked back in bed, so they upped her morpine just a bit which has really seemed to calm her down. As she lays here, she is so expressionless and untalkative. The only time she really talks is if I ask her a specific question. Of course these behaviors remind me of the difficult days we endured in December and January. These are such long days in the room. I just popped in "Beauty and the Beast", so hopefully that will entertain her for a little while. I hope to get her up again in a while and take her on another car ride. They aren't allowing her to eat anything as of yet. She can have ice chips and water, but hasn't even been interested in those. I anticipate a few more days here yet.

We haven't heard anything on the dates for going to Ohio yet. I have been in contact with the nurse coordinator there and we should hopefully know something in the next couple of weeks or so. All of Kylie's records were supposed to have been sent to OH in January. However, I found out in March that they still had not received them. So, they arrived just a month ago or so. We are getting very anxious to get this motility testing done so that we can get rid of this ileostomy. The ileostomy was absolutely necessary and it has done wonderful things for her. However, it has also caused more than enough trouble. We'll let you know when we hear on the dates.

Kylie's highly entertained with a new toy given to her

Time for an x-ray baby

Taking baby's temperature

Back in the Hospital

It has been so long since I've updated. For days now, I've been intending to tell all of you how great Kylie's been doing. Well, that all changed last night. Around 7 pm or so, Kylie's intestine prolapsed. I rushed her into Children's ER while Kaycee stayed at home with Carson. By the time we arrived, her intestine had probably come out about 6 inches. Both operating rooms were busy when we arrived, so we did have to wait a couple of hours. Around, 10:30 or 11pm, Kylie was back in surgery. My mom sat with me during Kylie's two-hour surgery. This surgery was the most involved of any of her surgeries so far. The surgeon actually closed up her old stoma on her left side and moved it to her right side. A new location would help ensure that this would not happen again. Her past surgeries have been done lariscopically. However, he needed to completely open her up last night, so she has about a 3-inch mid-line incision--ouch! The surgeon did have to remove the 6 inch segment of small intestine that prolapsed due to the blood supply that was cut off. He is very confident that in no way should this affect the function of her small intestine. Thank you Lord!

She had a really good night as she is on a morphine drip for pain control. As of right now, she is still doing fairly well. I can tell she is a little more uncomfortable. She can hardly move due to the incision. Poor thing! She doesn't even want me to hold her.

Again, we would so appreciate your prayers for Kylie's comfort and for a speedy recovery. It is hard to fathom that we are back here after months of doing so well. But regardless of our circumstances, we know that the Lord is in control and that Kylie is in His hands. Again, our trust is in Him.