Removal of Colon Today

Here's a picture I took of Kylie's very distended tummy before we left home

The no-fun ng tube

A wagon ride down to the lobby

Kylie's doing good on this Monday morning. We've already been out for a wagon ride around the floor upon her request. Surgery has been moved to noon instead of 1-2 in the afternoon, so that's good news. I also failed to mention the other day that Dr. A was able to contact the motility doctor in Ohio regarding her situation. This time, he spoke with Dr. DiLorenzo, the top doc on the motility team, which was great. He sent them her terrible x-ray and Dr. DiLorenzo completely agreed that her colon absolutely does NOT work. He doesn't have answers as to why the motility testing came back normal. However, they both agreed that their only option is to go ahead and remove her colon. Dr. DiLorenzo did say that if this surgery is not effective for her, the problem most likely lies in her pelvic floor. It has to do something with the positioning of the rectum--sorry, I don't completely understand it myself or else I'd give you a better explanation. There is no way to test for this condition in children though it can be done in adults. With this condition, the only treatment would be a life-time ileostomy. Dr. A is very optimistic that her pelvic floor is not going to be the issue. Would you please pray with us that removing her colon would be completely effective?